We’ve been really touched by all the messages of support we have received over the last few days from our community and guidance from the experts. In this blog we are sharing their advice on how to stay safe in the cocoon.
Clarity for Watch & Wait patients
Following the publication last Friday of the HSE guidelines for the medically vulnerable, we had a number of inquiries from people in Watch & Wait or Active Surveillance asking “but does that mean I have to cocoon?”.
A reminder the HSE have advised that….
“people with cancers of the blood or bone marrow such as leukaemia, lymphoma or myeloma who are at any stage of treatment”.
Several CLL and other blood cancer experts have confirmed to CLL Ireland that Watch & Wait or Active Surveillance patients should cocoon as this is the most appropriate action the immunocompromised should take.
They also advise that should you have any questions about your particular circumstances, tests or treatments you should contact your Cancer Nurse Specialist or Haematologist for advice.
Wiping down packaging
Recent research published in the New England Journal of Medicine has shown that the virus can remain contagious on different surfaces – and for days in some cases. So precaution is advised.
Many of you have shared your experiences from within your cocoon which we can all relate to.
With many of us getting deliveries on the doorsteps one of our community shared his experience of social distancing while sorting out a delivery intended for a neighbour.
“A couple of days ago, I was doing a bit in the garden when a delivery man walked in. The delivery wasn’t for us, but he couldn’t find the address. He read out the address, but I couldn’t make out what he was saying… I told him to put the parcel down and go back a few meters… I went to the parcel, looked at the address, but still didn’t recognise it. I looked up on eircode, found it, it was quite close by. I then put my phone down on a seat, stepped back and invited him to look at the map. He left knowing where to go…”
Others described how friends and family members are helping by dropping off groceries – leaving them in the porch, inside the wall of a garden and even in the boots of cars!
We do enjoy hearing from you, so do share your stories from your cocoon – especially those where our community can learn from your experiences!