Latest News
These are CLL Ireland’s latest news posts from Facebook – but make sure to visit our CLL Ireland Facebook page for older posts.
We know our community are taking lots of precautions but the immunocompromised should also be mindful of the advice of the experts and consider wiping down the packaging on shopping coming into your homes...
www.rte.ie/news/coronavirus/2020/0401/1127735-coronavirus-washing/
Wash hands and wipe down shopping, warns health group
www.rte.ie
Supermarkets are high-risk sites of infection for Covid-19 because of a disregard of hygiene standards, a group of health, environmental and development professionals has claimed.Dear friends of the CLL Advocates Network,
thanks to diligent volunteers, the "COVID-19 and CLL Patients Statement" is now available in 7 languages:
• English
• German
• Spanish
• Czech
• French
• Italian
• Hungarian
The statements are available for download here: www.clladvocates.net/
A big THANK YOU goes to Jana Pelouchová (Diagnóza leukemie, Czech Republic), Pierre Aumont ( SILLC, France), Felice Bombaci (AIL, Italy) and Ibolya Kéri (MOHA, Hungary) for their kind support in translating this information!
If you can help translate the statement into your respective language, we would be grateful for support. Please contact us at info@clladvocates.net to ask for the editable file.
www.facebook.com/7851693875/posts/10157635337848876/?substory_index=0As vulnerable people begin cocooning now is the time that they will need as much help from the wider community as possible.
Here are some ways you can support people who may be isolated and can't go outside. For more visit www.Cancer.ie/Coronavirus
In her latest blog, Jan shares her experiences of the last few tumultuous days, both for her and all in the #CLL community in Ireland who, last night were unequivocally told to #StayHomeAndStaySafe
clli.ie/clarity-hope-and-the-new-normal/
Inside the cocoon - CLL Ireland
clli.ie
28 March 2020 Clarity, hope and the new 'normal' - Jan Rynne shares her experiences over the last few tumultuous days in her world and ours, from inside her cocoon.We're asking our friends & supporters to think of the Irish Cancer Society today - Daffodil Day. We really appreciate all the help and support they offer us and our community and wish them well with their Digital Daffodils today!Today should have been Daffodil Day, a day when communities all over Ireland come together to support people affected by cancer. Since announcing that Daffodil Day was cancelled due to coronavirus, we have been overwhelmed by the response to help. Many of you have been in touch to see how you can still get your Daffodil this Friday 27 March to show your support.
Inspired by your kindness, you can now get your Digital Daffodil on www.cancer.ie to help fund vital services and research. Please note we are experiencing a high volume of donations on our website. If you are experiencing issues donating online, you can donate through Facebook by clicking the Donate button.
We're all in this together, apart but not alone.
Jan was interviewed as part of this article published by @thejournal today which shines light of the problems #Cancer patients are having due to restrictions in travelling for treatments.
www.thejournal.ie/cancer-patients-treatment-abroad-coronavirus-5053079-Mar2020/
www.thejournal.ie
A number of cancer patients rely on treatment overseas for various different types of cancers.'The Corona Virus Explained...' This video by @OurWorldInData is well worth a watch for anyone confused or not fully understanding the way viruses move and infect, and how pandemics end.... and we are all crossing our toes that #COVID19 will end soon.
youtu.be/BtN-goy9VOY
We teamed up with Kurzgesagt to make a video about the COVID-19 pandemic
ourworldindata.org
We worked with the Youtube channel, Kurzgesagt, to make a video on the COVID-19 pandemic and what to do about it.CLL Ireland's good friend Dr Brian Koffman and his US based CLL society will have a webinar COVID-19 virtual community meeting that our members should find informative this Friday details attached.
Stay Safe
cllsociety.org/cll-society-webinar-covid-19-virtual-community-meeting/
CLL Society Webinar: COVID-19 Virtual Community Meeting | CLL Society
cllsociety.org
By this time, we have all been greatly affected by the global COVID-19 pandemic, and the situation continues to evolve. It is particularly important that CLL patients and their caregivers are empowered with credible, up-to-date information, due to their increased risk.Sean O'Neill is the chief reporter of The Times but is also a CLL patient who writes his personal thoughts on being one of the vulnerable during this COVID19 crisis. As the UK enter lock down and Ireland will probably follow soon we value Sean's insights.
www.thetimes.co.uk/article/coronavirus-it-is-daunting-to-be-told-how-personally-dangerous-this-vi...
‘It is daunting to be told how personally dangerous coronavirus is’
www.thetimes.co.uk
I have never before considered myself to be a vulnerable person. As a reporter, much of my work has been about highlighting the plight of the vulnerable.Today, however, I expect a letter from the NHSDuring this #COVID19 crisis we are hoping to share stories with our community of the challenges and experiences that those living with #CLL face. In her first blog, Jan Rynne sends greetings from her 'cocoon'...
clli.ie/200321_jr/
Stories from inside the Cocoon - CLL Ireland
clli.ie
21 March 2020; Jan Rynne shares her view from inside the 'cocoon' over the last few days, as the Covid19 crisis continues in Ireland