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These are CLL Ireland’s latest news posts from Facebook
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I hope you get a chance to have this. CAR-T saved my life at St James 3 years ago, but I live about 20km away from Kilmainham and it was relatively easy to deal with the in-patient stay and the out-patient check ups.
It was such a privilege to welcome the Lymphoma Coalition to Dublin this week! 🇮🇪✨
And for CLL Ireland Michael Rynne to open the global summit.
CLL Ireland is incredibly proud to be part of this remarkable Coalition, now representing over 100 member organisations across the globe.
Especially great to connect with our CLL community from around the world within the Coalition.
This connection keeps us united with friends and allies worldwide, all driven by one shared mission: ensuring every patient, everywhere, has access to the very best treatment and care, no matter where they live. 💙
A heartfelt thank you to Lorna Warwick for your extraordinary dedication and service to our community you’ve built something truly special. And a warm welcome to our new CEO, Patricia Gilmore, we’re so excited for this next chapter together! 🚀
A big thank you to Susan Thornton and Guy Bouguet for steering the Coalition in the right direction and making sure the voices of the members are heard.
Special thanks to the LC team Natacha, Shawn, Catherine, Kim, Amanda and Marjorie for putting this conference together.
The advocacy and collaboration continues.
#LymphomaCoalition #CLLIreland #GlobalPatientVoice #HealthEquity #PatientAdvocacy
European CLL Association - ECLLA
Brian Koffman
CLL Society Inc.
CLL Support
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CLL Ireland was delighted to attend this important event at Dáil Éireann to campaign for a Cellular Transplant centre in Cork.
It was incredibly encouraging to see such strong support from our politicians! 🇮🇪
Also great to see so much interest in blood cancers and it's impact on our community.
It is so vital that blood cancer patients across Ireland have access to the very best treatments, closer to home.
We were heartened to see powerful international support too, including from Professor Ibrahim Yakoub-Agha, President of the European Society for Blood and Marrow Transplantation (EBMT), and from our own expert consultant Vitaliy Mykytiv at Cork University Hospital (CUH).
Hearing patient stories and seeing so many blood cancer transplant survivors standing together in support of this campaign was truly powerful. Their voices make all the difference 💙
A huge thank yoMags McCarthyarthy and Senator Eileen Lynch for organising such a meaningful, impactful day, we stand with you all in calling for stem cell transplant and CAR‑T capacity to be expanded at CUH, for better care for patients across the South and across Ireland.
lnkd.in/eTn9-P#cllirelande#bloodcancera#stemcelltransplantp#CARTTherapye#cuh #PatientVoiceV#HealthcareForAllo#oneeuropeequalcarel#ecllaEC#bloodcancerancIrish Cancer SocietyciCancer Trials IrelandelHSE IrelandeEuropean CLL Association - ECLLAECLLA ... See MoreSee Less
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💙 Amazing day so far at our CLL Ireland Patient & Care Partner Information Day in Dublin! 💙
It has been fantastic to see so many members of our CLL community come together today to learn, share experiences, ask questions and connect with one another.
We have had a fantastic line-up of expert speakers, advocates and patient voices, with some really informative and inspiring discussions about living with CLL, managing the challenges of the disease and supporting our community.
A huge thank you to everyone who has joined us today, to all our speakers and panellists, and to our supporters who help make days like this possible.
Amazing speakers so far and a big thank you to
Lorna Warwick Sarah Gunn, Dr Niamh Appleby, Melissa Martin Joanna McLernon Coomey
Amanda Kracen
Most importantly, it is wonderful to see our community together. Our voices matter, and together we are stronger. 💙
#CLLIreland #CLL #BloodCancer #PatientAdvocacy #PatientVoice #CarePartners #CLLCommunity ... See MoreSee Less
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Today is a very special day for the CLL Ireland community. 💙
We are delighted to welcome patients, care partners and friends to our CLL Ireland Patient & Care Partner Information Day in Dublin.
We have an incredible line-up of speakers who will share their expertise, experience and practical advice, but most importantly, today is about our community: coming together, listening, learning and making sure the voices of people living with CLL are heard.
A special welcome to our international speakers.
We are particularly excited to welcome Brian Koffman, a founding member of the CLL Society Inc. and someone who has been living with CLL for more than 20 years. Brian is joining us in Dublin to share his personal experience, knowledge and insights with our community.
We are also delighted to welcome Lorna Warwick CEO of Lymphoma Coalition. CLL Ireland is proud to be a member of Lymphoma Coalition, and we greatly value the opportunity to be part of this global community working together to improve the lives of people affected by lymphoma and CLL.
Another important international speaker, Sarah Gunn Senior Project Manager with Picker Institute Europe who help CLL Ireland with their surveys.
We also hear from a great line up of clinical speakers and the CLL Ireland team.
Proud to have Fionnuala Clifton as our MC for the day.
Days like today remind us of the importance of connection, information and support. No one should have to navigate CLL alone.
We are really looking forward to seeing everyone, catching up with old friends, meeting new ones and sharing a great day together.
Welcome to Dublin and welcome to the CLL Ireland community! 💙
#CLLIreland #CLL #CLLCommunity #LymphomaCoalition #PatientAdvocacy #BloodCancer #CarePartners #PatientVoice
Jan Rynne
Irish Cancer Society
Joanna McLernon Coomey
Beaumont Hospital, Beaumont, Dublin 9
European CLL Association - ECLLA
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Well done CLL Ireland 👏❤️
Great day! Thank you for inviting me to participate.
Sorry but I can’t be there. I would really like to have attended but I’m away.
Hope it all went well folks. Thinking of you all.
Do we just turn up?
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A great day for CLL and blood cancer advocacy in the European Parliament as Blood Cancer Awareness Month comes to an end.
European CLL Association - ECLLA
has launched its new Policy Brief, highlighting the need to keep CLL and the needs of people living with blood cancers firmly on the European agenda.
A big thank you to MEP Regina Dorothy for hosting and supporting this important event, and to everyone who continues to raise the voice of the CLL community.
Together, we can help ensure that the needs and experiences of people living with CLL are heard at European level. 🩸🇪🇺
#CLL #BloodCancerAwarenessMonth #eclla #EuropeanParliament #PatientAdvocacy ... See MoreSee Less
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Thanks for all your hard work on this. 🙏
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⏰ Only 2 weeks to go!
Our CLL Ireland Patient & Care Partner Information Day is almost here.
Have you registered yet?
tinyurl.com/4bark58x
We have an amazing lineup of speakers joining us from Ireland and internationally, with a day packed with information, education and opportunities to connect with others affected by CLL.
Preview of some of our speakers.....
🎤 Dr Carmel Waldron, St James’s Hospital — a CLL specialist who is leading many important clinical trials.
🎤 Dr Brian Koffman — a GP and CLL patient for more than 20 years. Dr Koffman is also the founder of CLL Society in the US and brings both professional and personal experience of living with CLL.
🎤 Lorna Warwick, CEO of Lymphoma Coalition — Lorna has worked tirelessly to improve care, treatment and access for patients and their families, no matter where they live in the world. She will update us on the Coalition’s Global Patient Survey, in which Irish patients also participated.
🎤 Dr. Amanda Kracen is an Associate Professor in Psychology at the National College of Ireland in Dublin, Ireland. She serves as the coordinator of the Irish Psycho-Social Oncology Network (IPSON), a multidisciplinary professional group dedicated to providing excellent, equitable cancer care in Ireland.
We’ll also hear from patients and care partners, as well as clinical nurse specialists, sharing their knowledge, experiences and insights.
Also hear updates from the CLL Ireland team on advocacy topics and campaigns.
💙 Whether you are living with CLL, supporting a loved one, or simply want to learn more, we’d love to see you there.
📅 Only 2 weeks to go — don’t miss it! ... See MoreSee Less
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