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Dr. Amanda Kracen, Associate Professor of Psychology at NCI
& co-ordinator of The Irish Psycho-social oncology Network (IPSON) discusses Quality of Life Issues: Managing Uncertainty, Acceptance, and Resilience while Living on Fault Lines
This video was recorded at the 2023 CLL Ireland In Person Patient Information Day held in Dublin, Ireland on 16 September 2023.
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CLL Ireland Videos
clli.ie
Videos provided by CLL Ireland to help empower CLL patients and carers by providing topical information.Comment on Facebook
Spanish CLL Group have just produced treatment guidelines for #cll patients.
Ireland should have a similar strategy to help with shared decision-making ... See MoreSee Less
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This research is important for care partners of those with blood cancer to add their voice.
It only takes a few minutes of your time.
September is #BloodCancerAwarenessMonth. If you are caring for an individual with CLL, Myeloma, MDS or Indolent lymphoma please consider taking part to share your experiences #WLD23 #WorldLeukemiaDay
Today is #WorldCancerResearchDay and #BloodCancerAwarenessMonth if any carers of patients with #cll #MDS #Myeloma #Lymphoma would like to take part in this survey to share their experience please see below information
nuigalway.questionpro.eu/t/AB3uuw4ZB3vj… ... See MoreSee Less
Survey Move Alert | QuestionPro
nuigalway.questionpro.eu
This survey has been moved.Comment on Facebook
HSE vaccination programme begins from the 2nd October.
Older people and at-risk groups urged to protect themselves against both flu and COVID-19 by getting their vaccines
The HSE’s winter vaccination programme gets underway the first week in October with the roll out of the free flu vaccine and COVID-19 Autumn booster to recommended groups.
Flu and COVID-19 vaccines will give your immune system the top up it needs to help protect you from serious illness.
The COVID-19 autumn booster vaccine is recommended for people aged 50 and over. The flu vaccine is recommended for people aged 65 and over.
Both vaccines are recommended for healthcare workers, anyone who is pregnant or has a long term health condition.
Both vaccines will be available from participating GPs and pharmacists and can be given at the same time. Health and Care worker vaccination clinics will also be in place in some workplaces.
Comirnaty Omicron XBB.1.5, a monovalent vaccine recently approved by the European Medicines Agency has been recommended by the National Immunisation Advisory Committee in Ireland as this Autumns COVID-19 booster. This vaccine generates a substantially improved antibody response against certain COVID-19 variants and offers greater protection.
Dr Aparna Keegan, Consultant in Public Health Medicine, HSE National Immunisation Office, said: “This winter both the flu and COVID-19 viruses are expected to circulate. It is very important that all those who are invited, get both their free flu vaccine and COVID-19 booster vaccines. Flu and COVID-19 are caused by different viruses but both can cause serious illness. The flu vaccine does not protect against COVID-19. That is why it is important that even if you have had a COVID-19 vaccine you should still get your free flu vaccine. ... See MoreSee Less
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Thank you to all who attended our recent CLL Information day.
Professor Patrick Thornton video is now available.
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CLL Ireland Videos
clli.ie
Videos provided by CLL Ireland to help empower CLL patients and carers by providing topical information.Comment on Facebook
Just listened to Professor Patrick’s video . Really informative . Many thanks
Martina Kelly
A big thank you to all who attended the CLL Information day yesterday.
The questions and participation from patients and their care partners was fantastic.
Thanks to all the speakers Prof. Patrick Thornton, Amanda Kracen, Nick York and Rachel Fox who gave up their time.
A special thanks to Dr Rob O Connor who did a great job introducing the speakers and helping the day to run smoothly.
Videos will be available very soon.
We look forward to planning our next conference and connecting with you all again.
The advocacy continues....... ... See MoreSee Less
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Evening All There was a lady came up to me on Sat after the event and we had a lovely chat, we exchanged numbers & emails on the back of the itinery, she was to take my numbers and me hers, we were chatting so much we forgot to half the piece of paper , so the lady went off with both details! In case she is on here and might read this and not know what happened as is waiting for me to contact her I cant !! its up to fate now 🤞🫣
World Lymphoma Awareness Day – Lymphoma Coalition ... See MoreSee Less
Learn More
World Lymphoma Awareness Day – Lymphoma Coalition
lymphomacoalition.org
Home  / Events  / World Lymphoma Awareness DayWorld Lymphoma Awareness Day Posted on June 17, 2020September 8, 2023 by Admin DB We Can’t Wait – to Focus on Our Feelings! World Lymphoma Aware...Comment on Facebook
Today is World Lymphoma Awareness Day #WLAD2023
Healthcare providers need to be aware of the emotional wellbeing of patients diagnosed with lymphoma & CLL, it is something that cannot be ignored.
The focus is on the significant emotional impact of #lymphoma, including #CLL. 82% of 8,700 patients & caregivers responding to a 2022 global survey had psychosocial distress due to their cancer in the past year.
There are ways for patients to seek help and there are ways for healthcare teams to support them. Learn more at:
worldlymphomaawarenessday.org ... See MoreSee Less
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#WorldLymphomaAwarenessDay is coming up this Friday, September 15th! For those living with chronic lymphocytic leukemia / small lymphocytic lymphoma (CLL / SLL), too often the psychological and emotional impacts of their cancer diagnosis are overlooked. This year, We Can’t Wait to Focus on Our Feelings. #WLAD2023 ... See MoreSee Less
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Some good news for our CLL community.
The BTK inhibitor Zanubrutinib is now approved in Ireland from September 2023.
From the HSE Zanubrutinib is approved in the following criteria.
As monotherapy
for the treatment of adult patients with chronic lymphocytic leukaemia (CLL) who are treatment naïve and have del(17p) and/or TP53-mutated positive disease
for the treatment of adult patients with chronic lymphocytic leukaemia with relapsed and/or refractory disease following at least one line of prior therapy.
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Cancer Drugs Approved for Reimbursement - HSE.ie
www.hse.ie
The demand for the introduction of new cancer drugs is growing internationally and Ireland is no different. These drugs tend to be expensive and their introduction presents a particular challenge duri...Comment on Facebook
cllsociety.org/2023/01/zanubrutinib-approved-in-the-u-s-for-chronic-lymphocytic-leukemia-small-ly...
Today, on World CLL Day, we recognize the positive impact connecting with other #CLL patients and caregivers has on improving one’s mental and emotional well-being. CLL Society Support Groups build connections between individuals and have a strong emphasis on educating everyone about their complex disease. Find connection with a CLL Society Support Group: bit.ly/3vlbLWK #WCLLD23 #MentalHealth #WithTeamCLL ... See MoreSee Less
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On this #WCLLD23 1st of September we are uniting to improve understanding of the challenges involved in living with #CLL. A CLL journey is filled with uncertainty & worry. Patients can become empowered with the right support.
Visit: www.wclld.org/campaign-material-2023/
#MentalHealth #WithTeamCLL ... See MoreSee Less
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