Latest News
These are CLL Ireland’s latest news posts from Facebook – but make sure to visit our CLL Ireland Facebook page for older posts.
m.facebook.com/story.php?story_fbid=10158690161273876&id=7851693875
www.cancer.ie
Understanding the experiences of inpatient charges and debt collection Share Share via Twitter Share via Facebook Share via Whatsapp Share via LinkedIn Share via Email What is this research about? The Irish Cancer Society would like to carry out research with cancer patients who have incurred hospit...Some initial data about efficacy of vaccine for those of us who are on a BTK treatment or similar. This is not the whole story. But reinforces our need to remain cautious even post-vaccine...
ashpublications.org/blood/article/doi/10.1182/blood.2021011568/475742/Efficacy-of-the-BNT162b2-mR...
ashpublications.org
Key Points. Antibody response to BNT162b2 mRNA COVID19 vaccine in CLL patients with is markedly impaired and affected by disease activity and treatment.In patieWe have emailed all of our subscribers a very important survey. We would be very grateful if you would take the time to fill it in. CLL Ireland is currently working on a submission to support the approval of venetoclax and obintuzimab as a frontline treatment option. This would mean a game-changing, non-chemo option for patients in a frontline setting in Ireland. Please take the time to complete.
This is the PATIENTS SURVEY link us16.list-manage.com/survey?u=af1a53a9db417084591a35dc5&id=2571e45408
This is the CARERS/SUPPORTERS link us16.list-manage.com/survey?u=af1a53a9db417084591a35dc5&id=2571e45408
Very early days but this is another drug that looks promising for #CLL.
patientpower.info/a-new-btk-inhibitor-for-blood-cancers/
A New BTK Inhibitor for Blood Cancers?
patientpower.info
An investigational BTK inhibitor named pirtobrutinib (formerly known as LOXO-305) is showing promising results. Learn more.Car T would be another welcome weapon in our arsenal against CLL if it was available in Ireland. This article makes for an interesting read.
www.medicalindependent.ie/over-e8m-spent-abroad-on-car-t-cell-therapy-in-2019-and-2020/
Over €8m spent abroad on CAR T-cell therapy in 2019 and 2020
www.medicalindependent.ie
The HSE spent €8.18 million on patients receiving CAR T-cell therapy abroad over the last two years, as plans to establish the service in Ireland await finalisation, the Medical Independent (MI) can reveal. According to figures obtained by MI through Freedom of Information (FoI) law, €2.718 mill...Tomorrow is Daffofil Day 2021 and we ask all our friends and community to support this important event for people with cancer in Ireland
Good news for our UK friends. Another chemo free treatment available on NHS.
b-s-h.org.uk/about-us/news/nice-recommends-acalabrutinib-for-cll-treatment/
NICE recommends acalabrutinib for CLL treatment | British Society for Haematology
b-s-h.org.uk
A new, chemotherapy-free treatment for chronic lymphocytic leukaemia (CLL) is to be available on the NHS, it has been announced.It's another lockdown St Patrick's day for us all. We wish happiness and safety to our CLL community today and everyday and we look forward to a time when we can meet again in person.
Vaccine Update
We are pleased to share that all CLL patients have been reprioritised into cohort 4 on the vaccination list.
Including those in watch and wait.
We have been working in collaboration with Irish Cancer Society and IPPOSI to highlight our concerns for our community.
We would love to hear your experience going forward and please share in our private CLL Ireland chat.
Stay safe
www.cancer.ie/cancer-information-and-support/coronavirus-and-cancer-info-for-patients-families-vo...
COVID-19 vaccine and cancer patients
www.cancer.ie
COVID-19 vaccine and cancer patients Share Share via Twitter Share via Facebook Share via Whatsapp Share via LinkedIn Share via Email Many patients, family members, carers and people who volunteer or work directly with cancer patients, have contacted us to express their anxiety about when they will....
Uncovering the Value of Real-World Data for Blood Cancer
Published News