These are CLL Ireland’s latest news posts from Twitter and Facebook
This is why the @IrishCancerSoc has been campaigning for abolishing in-patient charges & ending the use of debt collectors:
“On one occasion, I received a call from the debt collectors during my chemo. I hung up, went to the bathroom and just cried...
New Paper out ▶️▶️
Outcomes of #CLL patients dual exposed to covalent BTKi & BCL2i
ORR 34% to next line of therapy, mPFS only 9m.
Plenty of work to be done in this space.
non-cov. BTKi, CART, bispecifics all key agents in development
#CLL #lymsm
https://www.tandfonline.com/doi/full/10.1080/10428194.2023.2190436
This will be of interest to immunocompromised communities who are still impacted by Covid.
👇
A reminder, this Friday at 1330, @IndependentSage
will cover an important issue- ongoing issued faced oby #immunocompromised. Thanks @MarkOak04974342 and @AlexRichter3 for this second teaser of what will be covered. Co-organisation by @SGriffin_Lab
. 😃 #forgotten500k
HAPPENING TOMORROW ! 🚩🚩🚩🚩🚩 https://twitter.com/AcuteLeuk/status/1637736871429013507
📣New webinar on schedule
⏱30 march 2023 - 4:30 pm - 5:30 pm CET
🎯Latest advances in the treatment of ALL - What does this mean for patients?
🔗Registration link https://us02web.zoom.us/webinar/register/WN_d2m_5XzxQRC51Iw-wIF9Ag
@LeukaemiaCareUK @CLLAdvocates @cmlnet
#BeLeukemiaAware #Leukemia #FreeWebinar #Webinar
Today, our 2023 Patient Education Programme class is meeting in person in Dublin for the first time for their kick-off workshop! Welcome to all the new students - we are so excited to add to our network of expert patient partners!
"We need to make sure we build the right houses, and unless significant action is taken, we will see the numbers of older people waiting for social housing continue to increase.”
ICYMI: Our CEO @SeanMoynihan_ on @drivetimerte yesterday evening.
https://www.rte.ie/radio/podcasts/22230623-more-than-one-in-four-on-the-housing-list-over-50/
Next-generation genomic sequencing (NGS) is used in #CLL/SLL and other #cancers to help inform which cancer treatment may be best for the individual. This recent study found the positive news that the use of NGS is increasing for those of minority descent. https://bit.ly/3TRXs7I
Cancer Care in COVID-19: Exploring the Experiences of Haematology Patients
You are invited to take part in a research study about your experience as a haematology cancer patient during COVID-19. If you choose to take part, you will be invited to complete a questionnaire. This research is being conducted by researchers at the School of Nursing, Psychotherapy and Community Health, Dublin City University, Ireland. Before you decide whether you wish to take part, please read this page carefully. A paper version of this questionnaire is available. If you would like to complete a paper questionnaire, or have any questions, please contact Dr Amanda Drury via email at amanda.drury@dcu.ie. ... See MoreSee Less
Cancer Care in COVID-19 Exploring the Experiences of Haematology Patients
survey.zohopublic.eu
Your response would be greatly appreciated.Comment on Facebook
Cancer Care in COVID-19: Exploring the Experiences of Haematology Patients
You are invited to take part in a research study about your experience as a haematology cancer patient during COVID-19. If you choose to take part, you will be invited to complete a questionnaire. This research is being conducted by researchers at the School of Nursing, Psychotherapy and Community Health, Dublin City University, Ireland. Before you decide whether you wish to take part, please read this page carefully. A paper version of this questionnaire is available. If you would like to complete a paper questionnaire, or have any questions, please contact Dr Amanda Drury via email at amanda.drury@dcu.ie. ... See MoreSee Less
Comment on Facebook
Jan Rynne:
It's been a tough 'oul pandemic for all but particularly for those who are medically vulnerable and those with CLL. For us, Covid remains a threat and many of us have not had a protective vaccine response.It means we are still living half lives, in the shadows.
I usually save my political rants for twitter 😁thats where you will find me these days .....
For my birthday this year, I'm asking for donations to CLL Ireland. I've chosen this nonprofit because their mission means a lot to me, and I hope you'll consider contributing as a way to celebrate with me. Every little bit will help me reach my goal. I've included information about CLL Ireland below.
We want a fully informed and well supported Irish CLL community with the best treatment options available in Ireland for every CLL patient on their individual CLL journey without having to worry about cost or think about access.
Facebook takes care of the donation processing with no fees. And if you decide to give, you can choose who can see that you donated or donate privately. ... See MoreSee Less
This content isn't available at the moment
When this happens, it's usually because the owner only shared it with a small group of people or changed who can see it, or it's been deleted.Comment on Facebook
This content isn't available at the moment ... See MoreSee Less
This content isn't available at the moment
When this happens, it's usually because the owner only shared it with a small group of people or changed who can see it, or it's been deleted.Comment on Facebook
This live event starts at 1pm today.This will be of interest to the cancer community in Ireland: Mon., Mar. 13, 9:00AM EST for the "Cancer Knows No Borders-Celebrating Tripartite Cooperation to Enhance #CancerResearch" Symposium. Hear from partners @QUBelfast, @ucddublin, & @cancertrials_ie. Remarks from @IrelandAmbUSA & more. Visit => bit.ly/3YnIUxn ... See MoreSee Less
Comment on Facebook
This will be of interest to the cancer community in Ireland: Mon., Mar. 13, 9:00AM EST for the "Cancer Knows No Borders-Celebrating Tripartite Cooperation to Enhance #CancerResearch" Symposium. Hear from partners @QUBelfast, @ucddublin, & @cancertrials_ie. Remarks from @IrelandAmbUSA & more. Visit => bit.ly/3YnIUxn ... See MoreSee Less
Comment on Facebook
CLL educational webinar for patients & advocates. A collaboration between @CLLAdvocates @AcuteLeuk @cmlnet @LeukaemiaCareUK & clinical experts to give updates of latest advances in leukemia treatments. 🔗 Register here ➡️ ow.ly/EB2N50Ncfs3 ... See MoreSee Less
Comment on Facebook
CLL educational webinar for patients & advocates. A collaboration between @CLLAdvocates @AcuteLeuk @cmlnet @LeukaemiaCareUK & clinical experts to give updates of latest advances in leukemia treatments. Registration is now open here: ow.ly/zzVj50MYh7B ... See MoreSee Less
Comment on Facebook
Cancer Society ‘astonished’ at move to delay law banning insurer penalties ... See MoreSee Less
Cancer Society ‘astonished’ at move to delay law banning insurer penalties
lynchsyndromeireland.com
The right to be forgotten is the concept that cancer survivors who have gone a period of time without needing treatment should have their previous diagnosis disregarded when accessing insurance, li…Comment on Facebook
Today is #WorldCancerDay! Join CLL Advocates Network and others around the world in raising awareness of cancers by supporting equity in access to cancer care! 🌍 #CloseTheCareGap ... See MoreSee Less
Comment on Facebook
Happy #WorldCancerDay! Today we recognize all those living with the rare and incurable cancer, chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL/SLL). World Cancer Day is a time to raise awareness of the inequities that persist in cancer care. CLL Society has always been a proponent that all patients with CLL/SLL deserve to receive the best possible care for their cancer no matter where they live or what circumstances they face. #CloseTheCareGap ... See MoreSee Less
Comment on Facebook
February 4th is #WorldCancerDay Millions of people around the world often suffer and die unnecessarily due to a lack of awareness, resources and access to affordable and quality #cancer services.
The cancer care gap is not inevitable. Our systems can be reimagined, a person’s situation can be improved, their knowledge about cancer can be increased and their access to services made easier.
Collectively, we can reduce inequity by:
➡educating the public about cancer prevention as well as the signs and symptoms of cancers without screening protocols
➡equipping healthcare professionals with skills and knowledge including about how inequity influences cancer care
➡strengthening primary health care delivered in communities;
➡addressing through policy and programmes some of the social and economic factors that can negatively affect people’s health;
➡increasing the resources – meaning both money and people – dedicated to cancer research, and tracking the burden of cancer nationally to more effectively shape our investments;
➡implementing country-specific cancer prevention and control plans that address each country’s unique needs and resources.
➡accurately represent the current voices and values of patients and their caregivers when we work with healthcare professionals, researchers, industry and others. ... See MoreSee Less
Comment on Facebook