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These are CLL Ireland’s latest news posts from Facebook – but make sure to visit our CLL Ireland Facebook page for older posts.
Great to see all the advances in treatments for CLL highlighted on RTE Future Island.![]()
Well done Anne Marie as your story gives so much hope for our community.![]()
Great work also to Prof Patrick Thornton and all the medical staff who work on these trials.![]()
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There are now 83 patients on CLL17 with all patients having access to non chemo targeted options.![]()
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We have gone from having only chemo to treat our CLL to now have some options.
Please contact your local TDs to support this motion which takes place in the Dáil this week.![]()
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The pre-exposure prophylactic treatment #Evusheld is on the list of recommendations in the motion.![]()
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In the first major parliamentary debate on the impact of long COVID in Ireland, the Regional Group of TDs have tabled a Dáil motion which they will move on the floor of Dáil Éireann next Wednesday morning seeking the roll out of specialist services to support those who have failed to make a full recovery after being infected with the SARS-CoV-2 virus.![]()
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the primary mechanism to prevent long COVID is to minimise the incidence of COVID-19 infection, by ensuring that all practical measures to reduce the transmission of the virus are introduced and maintained in a time appropriate manner, including the provision of EVUSHELD to those who are immunocompromised or where vaccination is not recommended.![]()
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The 9 TDs will be seeking cross party support from every TD to have immediate steps taken to support all patients with long COVID, regardless of where they live, or how they are impacted.![]()
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denisnaughten.ie/2022/11/04/regional-tds-to-move-dail-motion-next-wednesday-seeking-immediate-act...![]()
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www.whoismytd.com/
www.whoismytd.com
Contact your elected representatives about the issues that matter to you Please contact your local TDs to support this motion which takes place in the Dáil this week.![]()
![]()
The pre-exposure prophylactic treatment #Evusheld is on the list of recommendations in the motion.![]()
![]()
In the first major parliamentary debate on the impact of long COVID in Ireland, the Regional Group of TDs have tabled a Dáil motion which they will move on the floor of Dáil Éireann next Wednesday morning seeking the roll out of specialist services to support those who have failed to make a full recovery after being infected with the SARS-CoV-2 virus.![]()
![]()
the primary mechanism to prevent long COVID is to minimise the incidence of COVID-19 infection, by ensuring that all practical measures to reduce the transmission of the virus are introduced and maintained in a time appropriate manner, including the provision of EVUSHELD to those who are immunocompromised or where vaccination is not recommended.![]()
![]()
![]()
![]()
The 9 TDs will be seeking cross party support from every TD to have immediate steps taken to support all patients with long COVID, regardless of where they live, or how they are impacted.![]()
![]()
denisnaughten.ie/2022/11/04/regional-tds-to-move-dail-motion-next-wednesday-seeking-immediate-act...
Shielding lymphoma sufferer, 25, 'still in Covid lockdown' | ITV News
bit.ly
A young woman with blood cancer who is currently shielding has told UTV she is "still in Covid lockdown." | UTV News @briankoffman shared his experience receiving #Evusheld with @ASPRgov to advocate for why it is important Evusheld be made available to all who may benefit from it. bit.ly/3TtPZui
This week in the UK the patient led group Evusheld4theuk launched a campaign with 15 leading charities to highlight the 500k medically vulnerable who are still shielding and their need for the protective antibody treatment Evusheld.![]()
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British politician Lord Jonathan Mendelsohn whose wife has a blood cancer explains his frustration with the UK approval system.![]()
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Evusheld is available in more than 30 countries now.![]()
Ireland is in a similar situation as the UK with a lengthy drug approval system which shows no sign of this treatment becoming available anytime soon.![]()
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youtu.be/BWpAQe-48vE
Zanubrutinib Demonstrates PFS Benefit Vs Ibrutinib in Relapsed/Refractory CLL/SLL
www.onclive.com
Zanubrutinib produced a superior progression-free survival benefit compared with ibrutinib in previously treated patients with relapsed/refractory chronic lymphocytic leukemia or small lymphocytic lym...2022 ICBCC Campaign Interim Report now available! - CLL Advocates Network
www.clladvocates.net
We are happy to announce that the 2022 ICBCC Campaign Interim Report is now published and released on the ICBCC website. This interim report summarises the activities to date carried out by the campai... WCLLD22: Understanding Issues of Dealing with CLL – the patient perspective / Marc´s testimonial (L)
WCLLD22: Understanding Issues of Dealing with CLL – the patient perspective / Marc´s testimonial (L)
youtu.be
On the occasion of World CLL Day 2022 (WCLLD22), CLL patient Marc from UK shares what it is like to live with a diagnosis of chronic lymphocytic leukemia (CL...bit.ly
These results are encouraging and show that patients with relapsed/refractory B-cell NHL treated with bispecific LV20.19 CAR T-cells have a high overall response rate and low rates of grade ≥3 CRS o...
Uncovering the Value of Real-World Data for Blood Cancer
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