Latest News
These are CLL Ireland’s latest news posts from Facebook – but make sure to visit our CLL Ireland Facebook page for older posts.
An Interesting article about frontline use of BTK inhibitors. In Ireland we still don't have this as a treatment option.
www.facebook.com/172721046114698/posts/3430287543691349/
Research Efforts Abound as the Role of BTK Inhibitors Continues to Evolve in CLL
www.onclive.com
Erlene Seymour, MD, discusses BTK inhibitors and how they have shifted the standard of care for the frontline treatment of patients with chronic lymphocytic leukemia.We appeal to our Irish CLL community to complete this important survey for CLL patients and carers.
Please take the time to fill this out. Help us to help you.
As treatment options improve, MRD and limited duration trestments become part of the conversation but patients may not have this information explained to them.
This survey will help to improve outcomes by highlighting what patients understand.
This is a short survey and there are no wrong answers
www.questionpro.com/a/TakeSurvey?tt=%2B7AqBwEwssU%3D
2020 Patient Survey: MRD Testing and Limited Duration Therapy | Survey Tools
www.questionpro.com
Survey ToolsAn update from friend to CLL Ireland and trailblazing patient Deborah Sims who is in the early days post her CAR T treatment.
If you have a few mins it's worth watching her video where she discusses the emotional impact of making this decision and how with CLL we sometimes have to 'jump' into treatments to access availability.
abtandme.com/2020/09/30/happy-hump-day/
abtandme.com
Day +9 I skipped the blog yesterday because nothing is really happening...although I did twitch briefly before I fell asleep last night and woke up with a growing like pain in my right femur th...The story of Emily Whitehead and her amazing journey with leukaemia and CAR-T therapy
www.facebook.com/31971571934/posts/10157437606916935/
CLL Ireland are delighted to participate in this initiative with our blood cancer partners Janssen, Multiple Myeloma Ireland, Blood Cancer Network Ireland and Irish Cancer Society.
'Ireland fares poorly in the collection of quality data on cancer care and treatment in comparison to other European countries'
www.janssen.com/ireland/better-data-cancer
www.janssen.com
At Janssen, we’re proud of our collaborations with healthcare providers and patient groups in Ireland to help improve patient outcomes and the effectiveness of patient care. An example of this is our Janssen-led partnership initiative Better Data for Cancer, which aims to promote benefits of bette...Good friend to CLL Ireland and trailblazing patient Deborah Sims has reactivated her blog to keep us all up to date with her next treatment. This time Deb is treating her CLL with CAR T in Australia. The link is below for anyone who wants to follow her story. We wish her every good wish and await positive updates.
abtandme.com/
twitter.com/CllIreland/status/1303812731162767362?s=19
twitter.com
“Irish patients will be interested in the trial #CLL17 t.co/azlb09F5Iw”Today on World Leukaemia day we are grateful for patients like Deborah who continue to blaze trails to benefit us all #WLD20
twitter.com/LeukaemiaAus/status/1301040364514500610?s=19
Leukaemia Foundation on Twitter
twitter.com
“Blood Cancer Taskforce member Deb Sims knows she's on her last chance to beat the #bloodcancer that's plagued her for nearly 10 yrs. But she's using her valuable time to make sure more people can access the best #treatments for them. t.co/v09ywD3Hl6”Happy World Leukaemia day to all of our CLL community 😀
www.facebook.com/986666751400602/posts/3197838540283401/
Uncovering the Value of Real-World Data for Blood Cancer
Published News