Latest News
These are CLL Ireland’s latest news posts from Facebook – but make sure to visit our CLL Ireland Facebook page for older posts.
As these uncertain times continue we want to check in with our community and to find out, in particular, how those living on the island of Ireland who have CLL are doing.
If you have CLL, or can answer on behalf of someone who does, would you mind giving us just a few minutes of your time?
By completing this short anonymous survey you can hep highlight what it is like living with CLL during Covid-19 on the island of Ireland.
www.surveymonkey.com/r/CLLI_200524_FB
This might be of interest to some of you in our community but please bear in mind that there are regional and geographical differences in how we are respondng globally to Covid 19. #CLL #COVID19
www.facebook.com/172721046114698/posts/2997865410266900/
CLL Answers Now: What's My Current Risk for Coronavirus?
patientpower.info
What's the latest data on my risk of getting the coronavirus and the complications that could come from it as a CLL patient? Host Andrew Schorr talks to Dr. Matthew Davids from Dana-Farber Cancer Institute about his experience treating patients in Boston. They are joined by CLL patient advocate Mic...www.facebook.com/7851693875/posts/10157825019678876/
New illness payment must be extended to cocooning cancer patients- Irish Cancer Society
www.cancer.ie
Cocooning cancer patients must have fair access to pandemic illness payments so they do not feel forced to risk an unsafe return to work, the Irish Cancer Society has said.Patient Power are holding online events to inform patients with CLL and we encourage our community to register to attend.
More details are on the link below.
Thank you Andrew Schorr for sharing this with us.
patientpower.info/events/event/cll-ask-the-expert/2020-05-12/1230
patientpower.info
Do you have a question for a chronic lymphocytic leukemia specialist? Join this Ask the Expert LIVE webinar for a 30-minute Q&A session. The webinar will feature Patient Power host Carol Preston and expert Dr. Jacqueline Barrientos, from Karches Center for Oncology Research, Feinstein Institutes fo...www.facebook.com/1016024785086154/videos/524783111474516/
This is UK based information but some in our Irish community may find this helpful.
In Jan's latest blog she describes her first tentative steps outside her 'cocoon' and muses over what's next for the CLL community as the Covid-19 crisis continues in Ireland.
Emerging from the Cocoon - CLL Ireland
clli.ie
6 May 2020; Jan Rynne describes her first tentative steps outside her 'cocoon' and muses over what's next for the CLL community as the Covid-19 crisis continues in Ireland.Clarification and advice from our friends in Irish Cancer Society and tips on how to stay safe with the new loosening of restrictions for those cocooning this week.
fal.cn
Advice on cocooning Share Share via Twitter Share via Facebook Share via LinkedIn Share via Email The Government and health authorities have issued advice for people who are over 70 and those who are extremely medically vulnerable to cocoon themselves in their homes to protect them from coronavirus....This looks like an interesting online class for those of us who are grappling with fatigue
www.facebook.com/142605683685/posts/10158373050683686/Cancer and Fatigue Talk via Zoom
Our friends in the Irish Cancer Society are streaming these exercises for anyone affected by cancer specifically which we think is a great idea. Remember though that we are all at different stages of our journey and if all the exercise you can face today is the couch and Netflix then we still think that you are fantastic - the CLLI team
www.facebook.com/7851693875/posts/10157751025468876/
