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Patient Story

GK – patient

“I was diagnosed with CLL in October 2015 at the age of 46.

I had a persistent sore throat for a month and then developed swollen lymph nodes on my neck. I was referred to a rapid access haematology clinic where CLL was diagnosed after some blood tests.

I am on “watch and wait” and have blood tests every three months.

The most significant symptom for me is overwhelming fatigue.  I work part time which helps me to cope with this.  I also walk regularly and have taken up yoga. My vitamin D levels were slightly low, so I take a supplement each day. These measures help. However, the most important thing that I have done is accept that sometimes I just need to go to bed early or take a nap during the day to recharge my batteries. My family understand this too and encourage me to rest if they see I am flagging.

Fatigue is quite common for people with CLL on watch and wait. It can be useful to share tips and information with others experiencing this symptom. ”

GK, 46 at diagnosis, female.

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