“I was diagnosed with CLL in October 2015 at the age of 46.
I had a persistent sore throat for a month and then developed swollen lymph nodes on my neck. I was referred to a rapid access haematology clinic where CLL was diagnosed after some blood tests.
I am on “watch and wait” and have blood tests every three months.
The most significant symptom for me is overwhelming fatigue. I work part time which helps me to cope with this. I also walk regularly and have taken up yoga. My vitamin D levels were slightly low, so I take a supplement each day. These measures help. However, the most important thing that I have done is accept that sometimes I just need to go to bed early or take a nap during the day to recharge my batteries. My family understand this too and encourage me to rest if they see I am flagging.
Fatigue is quite common for people with CLL on watch and wait. It can be useful to share tips and information with others experiencing this symptom. ”
GK, 46 at diagnosis, female.