Cll Ireland Is a Patient-Led Advocacy Group.
Our goal, is to ensure that anyone affected by Chronic Lymphocytic Leukaemia (CLL) can gain access to the information, advice and support they need when they need it!
Important Information
Latest News
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When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it, or it's been deleted. At CLL Ireland we are proud to work alongside the European CLL Association (ECLLA), a growing European network that is strengthening the voice of the CLL community and advocating for more equitable care across Europe.
ECLLA’s latest work is particularly important, including the launch of its European Policy Brief 2026 at the European Parliament calling for action to address inequalities in CLL care. Its work highlights the need for timely diagnosis, access to appropriate testing and treatment, clinical trials, and psychosocial support for everyone living with CLL, regardless of where they live.
We are proud to be part of this collective effort to ensure that the experiences, needs and voices of people living with CLL are heard by policymakers and decision-makers.
Together, through collaboration and patient advocacy, we can help turn shared priorities into meaningful change for the CLL community across Europe.
One Europe. Equal Care.
Read ECLLA’s latest newsletter and learn more about its work: www.eclla.org/eclla-newsletters/
#CLLIreland #ECLLA #CLL #PatientAdvocacy #EqualCare #StrongerTogether
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When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it, or it's been deleted. Well done to Mags McCarthy and all the patient advocates for bringing this important issue to Cork City Hall.
The bone marrow transplant centre at Cork University Hospital (CUH) closed in 2009 for refurbishment but never reopened. As a result, blood cancer patients in the region must travel to Dublin or Galway for life-saving treatments, placing an additional burden on patients and their families at an already difficult time.
A motion has now been brought forward calling for a CAR-T and stem cell transplant centre to be established at CUH.
CLL Ireland proudly supports this campaign.
Access to life-saving treatment should not depend on where you live. Our blood cancer communities deserve equitable access to specialist care, closer to home.
It is time to see this facility restored and the people of Cork and the wider region given the access to treatment they deserve.
#cllireland #bloodcancer #car-T #PatientAdvocacy #EquityInHealthcare
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When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it, or it's been deleted.
This content isn't available at the moment
When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it, or it's been deleted. 💙 A BIG THANK YOU FROM CLL IRELAND! 💙
A huge thank you to everyone who joined us for our recent CLL Ireland Patient and Care Partner Information Day. It was wonderful to bring our community together for a day of learning, sharing experiences and connecting with one another.
A special thank you to our fantastic local and international speakers for sharing their knowledge, expertise and insights with our community:
👏 Dr @Niamh Appleby, St James’s Hospital
👏 Melissa Martin, CNS, St Jame's Hospital
👏 Dr Ben Kennedy , Consultant Haematologist, CUH
👏 Joanna McLernon Coomey
👏 Sarah Gunn, Senior Project Manager, Picker
👏 Dr Amanda Kracen Kracen, PhD Professor of Psychology, NCI
👏 Jan Rynne Chair of CLL Ireland
👏 Lorna Warwick , Co-Chair of the Lymphoma Coalition Lymphoma Coalition
👏 Dr Brian Koffman Koffman, CLL Society Inc. CLL Society
👏 Michael Rynne Rynne CLL Ireland
And our wonderful MC for the day Fionnuala Clifton who kept everything running smoothly.
We are receiving amazing feedback.
A big thanks to all who raised money for CLL Ireland, especially Rebecca and Nicky Hynes and their Battle Cancer Team from ICON fitness and Martina Barrett in Cork who had her third coffee morning on September Ist World CLL Day #WCLLD26
Your time, generosity and commitment to the CLL community helped make this event so meaningful.
One thing we can all agree on is that this was a truly special day for our community. 💙
At CLL Ireland, we believe that informed patients and care partners are empowered patients and care partners. Days like this remind us of the importance of bringing people together, sharing knowledge and ensuring that the voices of people living with CLL are heard.
Thank you to everyone who helped make the day such a success. Together, we are stronger!
#CLLIreland #CLL #BloodCancerAwareness #PatientAdvocacy #PatientSupport #StrongerTogether
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When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it, or it's been deleted.I hope you get a chance to have this. CAR-T saved my life at St James 3 years ago, but I live about 20km away from Kilmainham and it was relatively easy to deal with the in-patient stay and the out-patient check ups.
Ireland needs similar action👇
Australia’s Blood Cancer Taskforce has today released five new “optimal care pathways” (OCPs) aimed at improving treatment consistency and reducing avoidable deaths from blood cancer.
@DonnellyStephen
https://www.petermac.org/about-us/news-and-events/news/details/new-guides-to-reduce-avoidable-deaths-from-blood-cancer
This content isn't available at the moment
When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it, or it's been deleted. At CLL Ireland we are proud to work alongside the European CLL Association (ECLLA), a growing European network that is strengthening the voice of the CLL community and advocating for more equitable care across Europe.
ECLLA’s latest work is particularly important, including the launch of its European Policy Brief 2026 at the European Parliament calling for action to address inequalities in CLL care. Its work highlights the need for timely diagnosis, access to appropriate testing and treatment, clinical trials, and psychosocial support for everyone living with CLL, regardless of where they live.
We are proud to be part of this collective effort to ensure that the experiences, needs and voices of people living with CLL are heard by policymakers and decision-makers.
Together, through collaboration and patient advocacy, we can help turn shared priorities into meaningful change for the CLL community across Europe.
One Europe. Equal Care.
Read ECLLA’s latest newsletter and learn more about its work: www.eclla.org/eclla-newsletters/
#CLLIreland #ECLLA #CLL #PatientAdvocacy #EqualCare #StrongerTogether
This content isn't available at the moment
When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it, or it's been deleted. Ireland needs similar action👇
Australia’s Blood Cancer Taskforce has today released five new “optimal care pathways” (OCPs) aimed at improving treatment consistency and reducing avoidable deaths from blood cancer.
@DonnellyStephen
https://www.petermac.org/about-us/news-and-events/news/details/new-guides-to-reduce-avoidable-deaths-from-blood-cancer
Looking for more information about CLL?
We’ve produced a handy booklet explaining all about CLL. We cover such topics as:
- What is CLL?
- Signs & Symptoms of CLL
- Staging
- Treating CLL
- Complications of CLL
- Living with CLL
- Talking about CLL
and much more! Click on the button below to open the file – it’s a great resource and we’re delighted to share it with you!