Our friends in Leukaemia Care have just launched a new campaign to support #CLL patients in 'Watch & Wait'. For many diagnosed this can feel more like a time of Watch & Worry... This new guide slso shares the experiences of some in W&W. ow.ly/rbfe30jwrua... See MoreSee Less
“Hearing the word Leukaemia was such a shock. He then went on to say that I would be put on ‘watch and wait’ and we were dismissed.” [Wendy, 67] Each year over 2,000 Chronic Lymphocytic Leukaemia (CLL) patients will be placed on Watch and Wait at diagnosis, instead of being treated. A proces...
It should go without saying that cancer patients should be shown kindness but as your Healthcare team should "not only effectively treat the disease but also address patients’ intense emotions [because]... A growing body of evidence reviewed at Stanford University shows that kind medical care can lead to.... reduced pain, anxiety and blood pressure, and shorter hospital stays." ow.ly/T2J630juMuR... See MoreSee Less
"The reality is that the "hows" & the "whens" do not matter. We are here now living a life after diagnosis. At the beginning, it feels like a cold, dark, scary and entirely unknown place for most of us. But it doesn't have to stay that way" via Ihadcancer.comow.ly/I80Z30juiqI... See MoreSee Less
As soon as you are diagnosed with cancer, life gets divided into two "eras": before cancer (aka BC) and life after diagnosis (aka AD). The three words "you have cancer" are what delineate BC from AD, and once we cross over, there is no going back. Life before cancer begins to feel like a distant mem...
So just 3 weeks to our National #CLL Information Day for Patients and Carers! Demand this year for places has been very high. So if you want to secure your place to attend please make sure you are registered to attend. To register and for more details please visit our website at: clli.ie/news-and-events/upcoming-events/... See MoreSee Less
19 ways to help someone during cancer treatment via MD Anderson Cancer Center "However you decide to help, remember: any love and support you provide can make a big difference, whether it cheers the patient up, or frees up their time and energy..."
Our hearts are heavy tonight as we mark the passing of Lisa Minkove who's sage wisdom and positive outlook will continue to motivate and inspire us in CLL Ireland. We were lucky to have benefited from her guidance and we will never forget her generosity of spirit. She blazed a trail taking part in an early phase #CAR-T trial. But although this treatment holds great hope for the #CLL community Lisa did not have a positive response and today we've lost a kind soul and a passionate patient advocate. Ar dheis Dé go raibh a hanam dílis. ... See MoreSee Less
Verastem announced that the Food and Drug Administration (FDA) has accepted for Priority Review the New Drug Application (NDA) for duvelisib for the treatment of relapsed or refractory chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL), and relapsed or refractory follicular lymphoma (...
"I’ve faced the possibility of death numerous times. But I survived those cancer diagnoses and continue the battle through metastatic disease even today. When you’ve lived a life like mine what you learn along the way can help get you through the next day" ow.ly/gi1n30jo9RR... See MoreSee Less